Afib

juggaknott2011

juggaknott2011

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Hey guys sorry haven't been on in a while been started a new job and was hit with Afib . So needless to say anyone else have dealt with Afib?
 
Yes, I have afib and hardly notice it But mine is very controlled and it does not effect my ventricle beat
 
I have atrial fibulation and also atrial flutter. Normally these conditions are associated with a rapid heartbeat, but my pulse (actual timing between actual heartbeats) is typically very slow. So far they are dealing with it by a drug called Eliquis, an anti-coagulant, because I guess there is danger of clotting taking place in the heart in the area of the flutter.

The biggest downside I find with the Eliquis is that I get more swelling and pip at injection sites because my blood just doesn't clot normally now.

If the fibulation/flutter doesn't get better the next step is another defibulation shock, to shock my heart back into rhythm, which I had in January. When/if the electro-shock fails, then the next step is ablasion surgery, and then if that doesn't work, a pacemaker.

Honestly, I was completely unaware I had the condition till I dropped dead. The heart can get stuck in a flutter and effectively just stop beating. It's called sudden cardiac death. You better hope someone is around to call an ambulance.
 
1bigun11 said:
I have atrial fibulation and also atrial flutter. Normally these conditions are associated with a rapid heartbeat, but my pulse (actual timing between actual heartbeats) is typically very slow. So far they are dealing with it by a drug called Eliquis, an anti-coagulant, because I guess there is danger of clotting taking place in the heart in the area of the flutter.

The biggest downside I find with the Eliquis is that I get more swelling and pip at injection sites because my blood just doesn't clot normally now.

If the fibulation/flutter doesn't get better the next step is another defibulation shock, to shock my heart back into rhythm, which I had in January. When/if the electro-shock fails, then the next step is ablasion surgery, and then if that doesn't work, a pacemaker.

Honestly, I was completely unaware I had the condition till I dropped dead. The heart can get stuck in a flutter and effectively just stop beating. It's called sudden cardiac death. You better hope someone is around to call an ambulance.
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Weird i do not have any symptoms with mine at all and i do not tolerate the anticoagulant drugs at all. They all make me feel like shit. I tried Eliquis, Xarelto and Dabigatran. i just do not tolerate any of them. I did a cardioversion and it worked but afib came back. I am going to talk to a electro cardiologist Monday and decide if we want to go the ablation rout or just leave it. i literally have no side effects from it and wouldn't even know i have it. I am taking daily baby aspirin for clotting for now. My cardiologist said that some people like me that are low risk sometimes just leave it. Mine was caused from not controlling bp and high hematocrit which are all controlled now. i do not cycle anymore just trt dose. unlike you brother i do not have the atrial flutter thought and my ventricle beat is normal.
 
Biggest issue i had with the anticoagulant drugs is they give me massive muscle spasms and make me so dizzy i can barely walk and when i discontinue the drugs all these sides go away. Dr's say i must be one of the 3% that get these sides
 
Kubes said:
Biggest issue i had with the anticoagulant drugs is they give me massive muscle spasms and make me so dizzy i can barely walk and when i discontinue the drugs all these sides go away. Dr's say i must be one of the 3% that get these sides
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I agree with the dizziness. I find myself leaning on walls and sitting more often....
 
I have had to deal with A-fib for a few years now. I have proximal a-fib so I only have it 2-3 times a year and it last 3-4 hours. I take Eliquis and a good stiff dose of metoprolol to keep it all in check.
 
BigTex said:
I have had to deal with A-fib for a few years now. I have proximal a-fib so I only have it 2-3 times a year and it last 3-4 hours. I take Eliquis and a good stiff dose of metoprolol to keep it all in check.
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Unfortunately for me i am in afib all the time and there are no meds for me because my ventricular rate is normal so slowing g my rate would do nothing. Last i checked my my ekg showed my atrial rate ate 69 and my ventricle rate was 63. They are suppose to be the same. Most people in afib have a atrial rate of 200-300
 
That sucks Kubes. My cardiologist just sent me to do a Cardiac PET/CT - Lexiscan. Thank goodness the results came back negative for ischemia with sufficient coronary flow reserve. Systolic function is within normal limits. At least there is no damage. I have to take 75mg of metoprolol 2 times a day to prevent any tachycardia. So I have a resting HR of about 52bpm. Like a fucking distance runner, drops to about 45-48 during sleep.

Is there anything that can be done with your case?
 
BigTex said:
That sucks Kubes. My cardiologist just sent me to do a Cardiac PET/CT - Lexiscan. Thank goodness the results came back negative for ischemia with sufficient coronary flow reserve. Systolic function is within normal limits. At least there is no damage. I have to take 75mg of metoprolol 2 times a day to prevent any tachycardia. So I have a resting HR of about 52bpm. Like a fucking distance runner, drops to about 45-48 during sleep.

Is there anything that can be done with your case?
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I can either do the ablation or probably just leave it. I do not get any symptoms from it. Like i said mine is controlled i do not even know its there cause my ventricle beat is totally normal. My pulse is rarely over 80 so drugs wont do anything. The drugs are to lower the ventricle rate and i do not need that. So with that said it will take a lot tomorrow to convince me that i need to waste more money on procedure but we will see. i am open to listening to what he has to say. if you take there anticoagulants you cannot take aspirin or any ibuprofen either.
 
Just took my daily BP and it is 126/80 pulse 69. Not bad at all
 
Kubes said:
I can either do the ablation or probably just leave it. I do not get any symptoms from it. Like i said mine is controlled i do not even know its there cause my ventricle beat is totally normal. My pulse is rarely over 80 so drugs wont do anything. The drugs are to lower the ventricle rate and i do not need that. So with that said it will take a lot tomorrow to convince me that i need to waste more money on procedure but we will see. i am open to listening to what he has to say. if you take there anticoagulants you cannot take aspirin or any ibuprofen either.
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Not at all familiar with this type of a-fib. As long as your doctor says there is no danger of cardiac blood clots I guess you are good and just go with what he tells you. Yea, I take 5mg of Eliquis 2 times a day. No aspirin but I do take NSAIDs daily. The only symptoms I get are the fluttering heart feeling when I do get the a-fib. Kind of worrisome but I still go about my life when it happens.
 
BigTex said:
Not at all familiar with this type of a-fib. As long as your doctor says there is no danger of cardiac blood clots I guess you are good and just go with what he tells you. Yea, I take 5mg of Eliquis 2 times a day. No aspirin but I do take NSAIDs daily. The only symptoms I get are the fluttering heart feeling when I do get the a-fib. Kind of worrisome but I still go about my life when it happens.
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No my doctor gets really mad and says i have to take Eliquis or Xarelto cause i am at risk of blood clots or heart attack and i just told him i will take my chances. I cant handle the side effects and the drugs ruin my quality of life literally.
 
New dr is scheduling an ablation but prescribing a couple drugs to try first and said 50 percent chance the drugs will stop the afib. cant remember the names but its worth a try
 
They are putting me on a low dose of flecainide 100mg 2 x ed and metoprolol tartrate 12.5 mg 2 x ed. Says it might work
 
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Kubes said:
No my doctor gets really mad and says i have to take Eliquis or Xarelto cause i am at risk of blood clots or heart attack and i just told him i will take my chances. I cant handle the side effects and the drugs ruin my quality of life literally.
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I started taking Eliquis after I went to two cardiologists and a vein specialist over pain and swelling in my lower leg and thigh. The cardiologist had no clue and the vein specialist immediately did a ultrasound and discovered I had a nice size DVT. He was terrified and put me on the Eliquis immediately. I had the swelling for maybe 3 weeks and never stopped hitting the weights. He told me he was surprised the clot didn't break off and cause a PE and put me in the hospital. It was supposed to be a 3-6 week treatment until they discovered a-fit now it is life time. They only thing I see with it is I get bruises from always running into shit and never know what it was there. I also have to tell the people who I do blood work. When I had surgery i May I had to stop them for 2 days. But thinking about how the blood could clot in the heart and cause a stroke is kind of scary. My doctor did say there were a couple of medication that would completely control a-fib but he said the side effects are not so good. He also mentioned the ablation. Let us know how the new meds workout.
 
BigTex said:
I started taking Eliquis after I went to two cardiologists and a vein specialist over pain and swelling in my lower leg and thigh. The cardiologist had no clue and the vein specialist immediately did a ultrasound and discovered I had a nice size DVT. He was terrified and put me on the Eliquis immediately. I had the swelling for maybe 3 weeks and never stopped hitting the weights. He told me he was surprised the clot didn't break off and cause a PE and put me in the hospital. It was supposed to be a 3-6 week treatment until they discovered a-fit now it is life time. They only thing I see with it is I get bruises from always running into shit and never know what it was there. I also have to tell the people who I do blood work. When I had surgery i May I had to stop them for 2 days. But thinking about how the blood could clot in the heart and cause a stroke is kind of scary. My doctor did say there were a couple of medication that would completely control a-fib but he said the side effects are not so good. He also mentioned the ablation. Let us know how the new meds workout.
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Will do i am nervous but if the sides are bad i will just stop. Right now i feel better then i have felt in like literally 2 years and i have no idea why. The EKG clearly showed i am still in Afib today but i have no symptoms
 
A long time ago I had endocarditis from bird flu. It really messed up my heart for awhile I had only a 12% injection fraction and afib. I was told if my heart did not improve quickly that I would need a transplant. I was started on atacand and coreg with a long amount of time my heart has been good. At least until 4 months when I needed my LVD cleared and a stent. My advice is keep on top of any potentially life threatening illness.
 
Thanks brothers I am trying to get a grip on all of this for sure . I was shocked 2 years ago like 6 times . I think to much caffeine caused it . But Its just crazy how your heart goes into afib and your body just kind of is like oh shit .
 
Kubes said:
New dr is scheduling an ablation but prescribing a couple drugs to try first and said 50 percent chance the drugs will stop the afib. cant remember the names but its worth a try
Click to expand...

Let me know how this goes bro . My friend was telling me to look into this
 
1bigun11 said:
I have atrial fibulation and also atrial flutter. Normally these conditions are associated with a rapid heartbeat, but my pulse (actual timing between actual heartbeats) is typically very slow. So far they are dealing with it by a drug called Eliquis, an anti-coagulant, because I guess there is danger of clotting taking place in the heart in the area of the flutter.

The biggest downside I find with the Eliquis is that I get more swelling and pip at injection sites because my blood just doesn't clot normally now.

If the fibulation/flutter doesn't get better the next step is another defibulation shock, to shock my heart back into rhythm, which I had in January. When/if the electro-shock fails, then the next step is ablasion surgery, and then if that doesn't work, a pacemaker.

Honestly, I was completely unaware I had the condition till I dropped dead. The heart can get stuck in a flutter and effectively just stop beating. It's called sudden cardiac death. You better hope someone is around to call an ambulance.
Click to expand...

thanks brother , they were asking me about a life vest I guess it can shock you if you go into afib but i don't know what route to take
 
juggaknott2011 said:
thanks brother , they were asking me about a life vest I guess it can shock you if you go into afib but i don't know what route to take
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I had a life vest for a while. They are a major pain. The idea that if you go into afib it will give you a MASSIVE shock will keep you from ever being able to relax once its on. And you have to go through activation/ de-activation steps when you put it on or take it off or else it can read that your heart has stopped while taking off the vest (or a loose fit) and give you a shock then too.

I got the feeling it was just a way to sell/rent folks a very expensive device to bill to insurance. I bet that if your insurance company says it wont cover the vest, your doctor will suddenly say that you dont need it.
 
1bigun11 said:
I had a life vest for a while. They are a major pain. The idea that if you go into afib it will give you a MASSIVE shock will keep you from ever being able to relax once its on. And you have to go through activation/ de-activation steps when you put it on or take it off or else it can read that your heart has stopped while taking off the vest (or a loose fit) and give you a shock then too.

I got the feeling it was just a way to sell/rent folks a very expensive device to bill to insurance. I bet that if your insurance company says it wont cover the vest, your doctor will suddenly say that you dont need it.
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brother you are so right ! i tell you the more i learn about health insurance the more you have to study your own body , ask questions and always do what you feel is right
 
Kubes said:
I haven't felt this good in a very long time. Cardiologist wants me to go in for checkups every 90 days. Hopefully the meds keep working. I really do not want an ablation. I do not read many long term good reviews on it
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That's awesome news...fingers crossed these meds will continue to help.
 
i have afib my dr took me off Eliquis also off Xarelto the blood thinners had me p;issing blood .. on digoxin and diltazium with 2 bp; meds a 24 and a 12hr one ...only other side effect i have is hurting joints as it effect s calcium
 
preist943 said:
i have afib my dr took me off Eliquis also off Xarelto the blood thinners had me p;issing blood .. on digoxin and diltazium with 2 bp; meds a 24 and a 12hr one ...only other side effect i have is hurting joints as it effect s calcium
Click to expand...

Yes when i took the eliquis it made me piss blood too. I swear that shit is poison. I do not take any anticoagulant anymore. The meds i am taking have me back in rhythm
 
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